[personal profile] jenett
I've been doing a lot of thinking about what it would take to provide actual meaningful support for real health needs and issues, rather than just theoretical 'if you did this, you'd be healthier!' that tends to crop up in the news over and over again.

Discussion below is obviously more focused on my own health issues because I know those best (though there's some thinking about other issues and ways that things might be supported), but I'm also interested in general discussion from other perspectives. In particular, feel free to link this (in either its LJ or DW versions) elsewhere if that would be appropriate for the elsewhere: both entries are public for once to make that easier.



Background
I've got chronic medical conditions. I've known for a long time that there are ways I could be healthier - but where resources really don't exist to support that in a way that actual resolves my concerns or issues. That's true even though a few of them are relatively trival to solve, especially for the amount of benefit that would come out of them.

My own issues:
- Migraines (which mostly don't affect other health factors, but that do benefit from sufficient rest and stress management techniques.)

- Asthma, which affects a lot of what I can do for exercise, the conditions I can do it in, and how I handle things after a flare, cold, or something else that affects lung function.

- Lung scarring from pneumonia in my early teens, which complicates the asthma. (At my best, even though I'm a longtime singer and wind player, I've gotten to about 90% of normal lung function for my age: I start seeing significant cognitive issues when I drop to about 75-80%.)

- Allergies - mostly not major by themselves, but they play into the asthma, and can affect sleep, lung function, or the spaces I can comfortably be in.

- The current exhaustion bits, which have done a number on my ability to do much of anything physical for very long or more than very slowly. I'm seeing small but steady improvement, but I'm not going to be able to rely on it for a while. (For those not reading much recently: vitamin D deficiency and subclinical hypothyroid are the current theory, and I've been on meds for both for about 10 days.)

- I am also substantially over medical-preferred weight: I'm currently around 245ish. I've been reading and thinking about the size acceptance movement since the mid-90s, and I'm also well aware of the Health At Every Size material. (For those not, or wondering about the issues of weight and health, this article does a good job of laying out the common arguments.

I don't care about the number: for me, health is very close to Moshe Feldenkrais's definition of having effective ways and means of realising our deepest dreams. There's stuff I can't do right now that I'd like to, and that might possibly change in the future. There are also a few things unlikely to change (the lung scarring means no scuba diving for me, ever, for example.)

So, all of these things get me thinking about the ways that our culture says "Be healthy!" and then either sabotages it, or at the very least, utterly fails to support things that could make a significant difference.

Things that have actually worked for me:
Living somewhere with a wide range of choices for finding healthy food. Living in an area where I have farmer's markets, locally grown produce, co-ops, and resources for other foods that avoid unnecessary chemicals, processing, etc. etc. (I do most of my shopping either at the local co-op or at Trader Joe's, with farmer's markets in the seasons where they happen.) This is partly choice, and partly luck, and partly benefits of having an education, job, etc. which make that choice possible. It is easier not to buy the highly processed stuff, or the stuff with high fructose corn syrup, if I do not shop in places that carry much of it.

My food habits still aren't where I'd like them to be (see below for some of why), but they're a lot better than they used to be. (I am still bemused by Elise commenting at the doctor's appt. she came to that my food habits are a lot better than most people she knows, because I still don't think they're that good.)

The discount my health insurance offers for gym membership if I go 8 times a month. It works for me because they don't track (or care) *what* I do once I check in: if I had to commit to a particular length or level of exertion, I'd be immensely turned off by it. (Because there are days I just can't do that.) The fact I just have to check in means that on good days, I do more, and on bad days, I do less, and it's all still better than not doing anything at all.

The online education offered by my health insurance- I can get gift cards for up to $125 a year for going through online seminars, doing challenges, or other things of that kind. Book money is pretty much always an incentive, thanks. I usually know the information they're offering, but sometimes there's a new application of something I hadn't considered, and anyway, I can do it at home when I'm lazing around.

Making it easier for me to drink water My thanks to whoever I got the tip from some years ago that if you have trouble drinking straight water, add a bit of something acidic to it. I do a splash of lemon or lime juice usually, but I've also done fruit vinegars and cider vinegar. (About a teaspoon per cup of the lemon or lime juice, and half that, maybe, for the vinegars. Rasberry is particularly nice) I am pretty much off of soda entirely except when I really want the caffeine. (for people who like the carbonation, I had a transition period of a couple of years where I drank fizzy water instead of soda. These days, I sometimes do half-fizzy, half-juice, but only every other day or so)

The tools no one seems to be offering:
But yet, there are health-related things that no one seems to be addressing adequately. I'm not just talking about some of the better known ones (groceries selling fresh and affordable produce in all areas, not just well-off ones, allowing apartment fixtures that allow for more substantial cooking than a microwave or hotplate, etc.) but also a myriad of little things that would actually help a lot of people (at not a lot of expense) if they were more accessible.

Specific and detailed information from qualified experts to support health-related goals that aren't purely medical My example: every time I have an asthma flare, my exercise drops to zero, and so does my stamina. Instead of seeing increasing improvement over years, I get it in a couple of month segments - the same hill over and over again, rather than new territory. This is immensely frustrating.

There are also things where I'd like to try them, but I'm not sure how to in a way that's reasonably safe and effective for me. For example, I have a rough idea of when (given weather and air quality) it's probably okay for me to try a longer walk outside, but I'd like help on refining that. I would sort of like to try biking, but between the asthma and the lung scarring (which makes deep breaths not work well when my torso is inclined), I am not sure how to go about it in a way that won't frustrate me. I don't always know when pushing through discomfort is sensible, or dangerous.

I sometimes - because I believe in poking my health care providers about this - ask about specific support for combining exercise and chronic medical issues. They look sorrowful, and go "You know, that *would* be helpful" - but there's no mechanism to provide it, or even referrals, beyond "Do what you can, when you can" which doesn't actually solve my problems.

And it's sort of silly, because my issues, at least, would probably be solved in a couple of sessions, with maybe a yearly follow-up. But I'd want them to come from someone who I could be pretty sure wasn't just going to suggest pushing through it, or taking my inhaler half an hour before I exercised, or the other really basic things I can figure out myself (or that I know don't help that specific issue.)

Resources for specific kinds of cooking needs My own personal desire is as follows: resources that a) involve minimally processed foods that b) can be cooked easily after work and c) make portions suitable for a single person who wants variety in their diet on d) a reasonable budget. I know the foods are out there, because I've worked some out - but it's lengthy and tiring to do all your own R&D on this kind of issue while also working. (I think there should be other variants, too, but this combo is my particular want.)

I can find healthy food recipes that feed 4-6. I can find recipes that feed 1 or 2 (but use processed stuff). I can find local food items, but that take a lot of cooking time, or make large quanities. I do some freezing, etc. but because work feeds me lunch (therefore leftovers don't get used for lunch), and because I'm not always home for dinner, I've found that making single servings of things often works better for me. (Also, because I never know what lunch at work is going to involve, single servings allow me to avoid having pasta in tomato sauce for dinner one night, lunch the next day, and dinner the next night, which is sort of tedious, as much as I am fond of pasta in tomato sauce)

Food tracking that focuses on types of food eaten, rather than calories or even nutrients. I'd love tracking systems that would let me input what I ate, and tell me "Ok, you had 3 servings of vegetables, but no servings of fruit yesterday - and you should really eat more green veggies today" (I don't have huge objections to calorie and other tracking data being there, but I only want to see it when I'm in the mood to deal.) My dream version of this would let people adjust independently to handle preferences - i.e. I do better on a higher protein diet, within reason, and I'm currently trying to take in more calcium to go with the vitamin D.

All three of these are things that would have a significant proven health impact for a lot of people, and they don't require new technologies or medical advances - but they're surprisingly unavailable.

Oh, yeah. A culture that actually supports good health choices, rather than just the easy ones, and adapting to different needs/conditions/limitations This requires a change in a lot of ways we deal with timing of work, stress, expectations on how much we accomplish in a day, etc. and I don't see it changing any time soon. But while I'm on the wish list, that's pretty high on it.

Food Tracking

Date: 2010-02-02 04:10 am (UTC)
syzygis: (Default)
From: [personal profile] syzygis
This is going to sound a little funny, but check out:
http://www.whattoexpect.com/pregnancy/eating-well/pregnancy-diet.aspx

What To Expect When You're Expecting breaks down food into 11 or 12 different groups. The book discusses what amounts are appropriate for primarily pregnant women, but also references pre- and post-pregnancy. If you ignore the "calorie" category, it supplies a full set of nutritional groupings that might be helpful.

Date: 2010-02-03 06:12 am (UTC)
firecat: red panda, winking (Default)
From: [personal profile] firecat
I love this post to pieces.

I can really, really relate to the issues about exercise. I need an expert in between "physical therapist" and "personal trainer," who can tell me how to exercise without injuring myself and how to modify exercises so they work with my body shape. But it seems to me that most physical therapists only tell you how to heal injuries, and most personal trainers don't know that much about individual body variations and are more in the line of providing motivation.

There's a community on LJ called fathletes that might provide some of what you're looking for.

physical therapists/personal trainer

Date: 2010-02-04 02:20 am (UTC)
From: (Anonymous)
Actually I did quiz a personal trainer about that precise topic, and she's been good about working with me when my knee or hip goes bad and rejiggering the exercises.

- innerdoggie

Date: 2010-02-03 11:03 am (UTC)
sqbr: I lay on the couch, suffering an out of spoons error (spoons)
From: [personal profile] sqbr
Hello, I'm here via firecat.

You know, a cheap easy healthy unprocessed food comm aimed at those with serious health problems (rather than overall healthy people just trying to lose weight) might be a good idea. I have lots I could post :) *ponders for when I am less spoon deficient*

But overall yes to a lot of this.

Date: 2010-02-06 06:11 am (UTC)
sqbr: pretty purple pi (existentialism)
From: [personal profile] sqbr
Heh. I was thinking about it some more and what counts as "healthy eating" for me may not for other people: for example I am very happy with my red creaming soda + cake mix cake since it may be full of preservatives and sugar but lacks fat and dairy and most importantly didn't use up all my energy to cook :)

Date: 2010-02-06 06:40 am (UTC)
firecat: red panda, winking (Default)
From: [personal profile] firecat
I think about this a lot. I'm not supposed to have dark leafy greens because they have a substance that leads to the formation of kidney stones, which I'm prone to. But people look at me like I have two heads when I say that I need to limit my consumption of spinach and beets.

Date: 2010-02-07 11:14 am (UTC)
sqbr: I lay on the couch, suffering an out of spoons error (spoons)
From: [personal profile] sqbr
Oh, I know what that's like. I have MORE issues with a lot of foods used to replace other stuff eg tofu, gluten free flour. So people go "I know you have some sort of intolerances, so to be safe I made gluten free tofu pizza" and I'm like "Noooo! Just give me steak and regular bread!"

Date: 2010-02-07 06:38 pm (UTC)
firecat: red panda, winking (Default)
From: [personal profile] firecat
Argh! Whatever became of asking?

Date: 2010-02-10 03:32 am (UTC)
sqbr: A cartoon cat saying Ham! (ham!)
From: [personal profile] sqbr
People seem to have this logic where they go "Sophie has lots of intolerances. This box lists a large number of intolerances it caters to. Therefore, it must be the best thing for Sophie!" and so at my birthday party I got TWO identical boxes of gluten free coconut biscuits (with "Gluten Free! Soy free! Dairy free! Egg free!" on the cover) when I can eat neither gluten free flour nor coconut and had specifically told everyone the one easily available biscuit I can eat (there is just one. Noone brought it :/)

Date: 2010-02-03 11:23 am (UTC)
From: [personal profile] elaine4queen
hi. i am a friend of firecat over on livejournal, but, like her, i write here first then it gets posted there, where i do most of my dialoguing.

i have fibromyalgia, which, for me, is mostly migraine, back pain, fatigue, brain fog, anxiety and unexpected flare ups of 'minor' conditions that come in for a side swipe. i have not worked for over seven years, and am on benefits in the uk.

i did a pain management course in hospital which no longer exists, but there is a book that came out of it called 'manage your pain' (practical and positive ways of adapting to chronic pain) http://www.amazon.co.uk/Manage-Michael-Nicholas-Molloy-Beetson/dp/0285636790/ref=sr_1_1?ie=UTF8&s=books&qid=1265195450&sr=8-1

the specific thing i got from this course was detailed instruction on setting base lines and pacing both activity and rest.

this course patched me up, got me off pain killers, but there was something missing. something which meant that i actually just ended up losing my relationship, picking up more work, then crashing much harder. the thing that was missing is addressed in the course this book http://www.amazon.co.uk/Living-Well-Pain-Illness-Suffering/dp/0749928603/ref=pd_bxgy_b_img_b is based on. i have met vidyamala, indeed, been taught by her. she is in a wheel chair and uses a watch with programmable alarms to prompt her to stand up for five minutes every hour. i had always used cooker timer type alarms, but this is better because you can set it for two different periods of time, and it is on your wrist, so harder to ignore. the cds are really essential if you are not an experienced meditator, and even if you are, these are orientated specifically for people with chronic pain.

pacing is very counter intuitive, but it does 'work' in that it keeps you moving enough, resting enough. for me, living alone, and having the fatigue thing as well, i find it very easy to ignore an alarm. what i don't find easy to ignore is a dog. so that's what i have finally got! nurse ratchet!

Date: 2010-02-03 01:30 pm (UTC)
From: [personal profile] elaine4queen
the basic stuff about working out base lines about pacing sitting, walking, standing, screen time, whatever, are covered in the first book.

using meditation techniques to encounter your new reality and be able to inhabit the 'A' of your condition to get to the 'B' of managing it while attending to the reality of your life is covered in the second book.

really, in the first book the very basic idea of for every hour you are active you should rest properly for ten minutes, and if you can't then you should take 20 after two should see off your fatigue and you should get more done and stay fresher. pushing and crashing over a cycle of a couple of days can run you into the ground if you're not careful, hence the hourly rest. in the second book, having covered body scanning and breathing meditation, you have skills for using a 'three minute breather' with which you can maximise those 'resting' minutes.

i am at a really basic level, where i can seriously only manage my own basic needs and now my dog's - but the fact of 'having' to deal with the dog's needs has helped me rein in activities that were making me push and crash, despite many years of knowing about and practicing these skills. nobody likes being unable to do stuff, but if you find pacing beneficial, which for fatigue problems i would put money on, then you prioritise things. you have rights in the workplace, and nobody is going to resent you taking your breaks differently than them if that is what you need and you express that need appropriately.

Date: 2010-02-03 03:47 pm (UTC)
From: [personal profile] elaine4queen
my eating could be better, it varies.

i can warmly recommend getting a dishwasher - washing dishes was a massive drain for me. they are quite cheap, the main expense is if you have to pay a plumber, but you may have a handy friend who could do it for you.

do friend me here or on lj if you like!

Date: 2010-02-03 09:07 pm (UTC)
firecat: red panda, winking (Default)
From: [personal profile] firecat
I seem to recall that [personal profile] elissaann has one of the "attach to sink" dishwashers and reviewed it on her journal a while back.

Date: 2010-02-03 04:24 pm (UTC)
From: (Anonymous)
I got here from firecat's journal. I haven't read the other comments, so I apologize in advance for duplication.

I've found nutrimirror.com very helpful for making sure I'm eating right nutritionally. I now make sure I get enough fruits and veggies every day, and way more iron than I used to.

My SO got me a home carbonation kit, so I can make fizzy water any time I like. It's easy to use, and once the initial kit is set up, much cheaper than store soda. He's experimenting with making OpenCola from essential oils.

http://www.quantifiedself.com/ is about gathering data to help one make better decisions about oneself.
I came across a website from there, which is for tracking chronic health conditiona and symptoms, and seeing what works for other people. I apologize for not recalling the name.

No one else is going to be as interested in your health as you. But health care providers, I beleive, find objective data convincing, and may be better able to help you, if they can see the broader patterns.

Sante.. tedesson

Date: 2010-02-12 06:14 pm (UTC)
From: (Anonymous)
The site is CureTogether

http://www.curetogether.com/index-2.php

Sometimes I have to stub my toe on the memory trace.

Date: 2010-02-04 01:22 am (UTC)
From: [identity profile] mjlayman.livejournal.com
I'm a friend of Stef/Firecat, who directed me over here.

I have Kaiser Permanente's Medicare Advantage plan, but I understand that they have pretty much the same things in a non-Medicare plan:

Specific and detailed information from qualified experts to support health-related goals that aren't purely medical - Kaiser has nurse practitioners who do this, but if you don't read the paperwork, you may not know.

Resources for specific kinds of cooking needs - I manage this myself (I can't stand up very long, so mine are more limited), but the Mayo Clinic has a good outline for it: Healthy Meals (http://www.mayoclinic.com/health/healthy-cooking/hq00474).

Food tracking that focuses on types of food eaten - These (http://www.nutritiondata.com/mynd/mytracking/welcome?returnto=/mynd/mytracking) folks are annoying about weight loss, but they have a tracking widget. I use them for the Nutrition part because I can only have 50gr protein a day. I can handle that okay at home, but who knows what restaurants do?

Date: 2010-02-04 01:27 am (UTC)
distractionary: apple in foreground, out-of-focus bridge in background. (Purple.) (Default)
From: [personal profile] distractionary
My only suggestion at this hour revolves around the bicycling; if you find a good bike shop around you, they might allow you to try out a recumbent bicycle. This might fix the incline/breathing issue. On the other hand, it might be just as bad in the other direction of incline; this is why it's worth trying before buying.

This post is interesting, so are the comments, and I'm going to reread later.

Date: 2010-02-01 10:09 pm (UTC)
From: [identity profile] leanne-opaskar.livejournal.com
resources that a) involve minimally processed foods that b) can be cooked easily after work and c) make portions suitable for a single person who wants variety in their diet on d) a reasonable budget.

I really like Eating Well for this. Eating Well Cooking for Two

I have their cookbook -- Eating Well Serves Two, and it's really good, but I do not use it all that often, because generally I like to make a meal for four. (That way we can have a meal for dinner and then lunch the following day.) It sounds like it'd be very useful for you; would you like my copy?

Date: 2010-02-02 12:07 am (UTC)
From: [identity profile] leanne-opaskar.livejournal.com
It's yours! I will drop it in the mail for you soon-ish. (:

Eating Well started as and is still doing a monthly cooking magazine. I have a subscription because I was so impressed with their recipes that I bought their magazines at the checkstand for over a year straight. (: All of their recipes include basic nutritional information (protein, carbs, fiber, fat, and if the food is particularly high in a nutrient), and they've started adding monetary cost per serving. They've also started indicating in some of their recipes how to cut it down to serve two. So you might want to take a peek at an issue and see if you like it.

It's awesome that you have a really good cafeteria at work -- both for you and your students. (: Mark has a cafeteria at his work, but it's easier for him if I make his lunch, since the diabetes makes eating a little trickier. (Also, I make better food. (; )

Mmmm, hummus. Now I'm hungry! (:

Date: 2010-02-02 01:24 pm (UTC)
From: [identity profile] alanaeveryday.livejournal.com
I'll second Eating Well. I had that book for a while but I gave it away because I prefer to cook at least 4 portions and freeze some of them. My in-laws gave me a subscription to Eating Well and it's my favorite cooking magazine by far.

Date: 2010-02-02 01:34 pm (UTC)
From: [identity profile] meranthi.livejournal.com
Making it easier for me to drink water

I really like mint and/or cinnamon sticks in my water, instead of lemon/lime. I like lemon/lime flavoring, but not in my water for some reason. Not unless it's lemonade. :)

Date: 2010-02-02 03:34 pm (UTC)
From: [identity profile] boojum.livejournal.com
I would sort of like to try biking, but between the asthma and the lung scarring (which makes deep breaths not work well when my torso is inclined), I am not sure how to go about it in a way that won't frustrate me.

I'm not sure if you're asking for advice on this or not, but if you are, there are non-bend-over bike options. I live in Portland, which is pretty bike-friendly. There are some bikes here whose riders basically have the posture of a piano player: vertical back, arms out, feet down. The upright bikes tend to also be geared lower, so it's more practical to go at a lower speed. "Step-through" is often a good keyword, or look for some of the Dutch/Dutch-inspired bikes that are aimed at parents. One of my friends knew that the bike shop she was in was the right one when she went bike-shopping wearing a long skirt and carrying a toddler and not only did they not blink, they suggested specific bikes that would work well for a skirt-wearing toddler-hauler. She doesn't have to bend over at all on that bike, not even to get on and off.
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