1. The illness I live with is: asthma, urethral cystitus, major chronic depression, Severe Sleep apnea
2. I was diagnosed with it in the year: 1984, 1981, 1983, 2005 3. But I had symptoms since: 1984, 1970, 1976, 1992
5. Most people assume: I am faking (I breath well as I am a singer), That it is nothing, That if I seem happy that I can't be depressed, that if I loose weight it will go away.
6. The hardest part about mornings are: getting out of bed.
8. A gadget I couldn’t live without is: Cpap and guitar tuner
9. The hardest part about nights are: Worries, noticing how hard it is to breath and worrying if I take the medication to breath that I won't get to sleep.
13. Regarding working and career: it is hard to know what is appropriate to share or not. It is hard to make sure that I apply for FEMLA yearly...even though I may only need not need it at all most years.
14. People would be surprised to know: Most days I carry a cloud around with me and feel like a failure. No matter how big my smile is.
15. The hardest thing to accept about my new reality has been: that I am not perfect and that it is okay and not really strange at all.
16. Something I never thought I could do with my illness that I did was: dance, receive awards, become respected.
19. It was really hard to have to give up: Spending time outside in the spring and fall and when there are air warnings. Being a country mouse at Baggiecon.
21. If I could have one day of feeling normal again I would: sleep over on a friend's couch.
26. When someone is diagnosed I’d like to tell them: work on breath strengthening exercises Don't put off the appointments with the urologist and find on who works specifically on your condition. Tomorrow is always another day, sometimes one need medication to correct what nature did not give, and there is always someone who will help one - Keep looking. Cpaps are a a blessing.
27. Something that has surprised me about living with an illness is: how many people don't get any of it and how many people don't want to talk about anything regarding their body.
28. The nicest thing someone did for me when I wasn’t feeling well was: You have so much courage, don't you realize that.
30 questions - my answers
2. I was diagnosed with it in the year: 1984, 1981, 1983, 2005
3. But I had symptoms since: 1984, 1970, 1976, 1992
5. Most people assume: I am faking (I breath well as I am a singer), That it is nothing, That if I seem happy that I can't be depressed, that if I loose weight it will go away.
6. The hardest part about mornings are: getting out of bed.
8. A gadget I couldn’t live without is: Cpap and guitar tuner
9. The hardest part about nights are: Worries, noticing how hard it is to breath and worrying if I take the medication to breath that I won't get to sleep.
13. Regarding working and career: it is hard to know what is appropriate to share or not. It is hard to make sure that I apply for FEMLA yearly...even though I may only need not need it at all most years.
14. People would be surprised to know: Most days I carry a cloud around with me and feel like a failure. No matter how big my smile is.
15. The hardest thing to accept about my new reality has been: that I am not perfect and that it is okay and not really strange at all.
16. Something I never thought I could do with my illness that I did was: dance, receive awards, become respected.
19. It was really hard to have to give up: Spending time outside in the spring and fall and when there are air warnings. Being a country mouse at Baggiecon.
21. If I could have one day of feeling normal again I would: sleep over on a friend's couch.
26. When someone is diagnosed I’d like to tell them:
work on breath strengthening exercises
Don't put off the appointments with the urologist and find on who works specifically on your condition.
Tomorrow is always another day, sometimes one need medication to correct what nature did not give, and there is always someone who will help one - Keep looking.
Cpaps are a a blessing.
27. Something that has surprised me about living with an illness is: how many people don't get any of it and how many people don't want to talk about anything regarding their body.
28. The nicest thing someone did for me when I wasn’t feeling well was: You have so much courage, don't you realize that.